How to Care for A Loved One With Parkinson's Disease

Parkinson’s disease (PD) is a chronic and progressive movement disorder that initially causes tremor in one hand, stiffness or slowing of movement. As the disease progresses, people may have difficulty walking and talking¹. Caring for a loved one with Parkinson’s disease can be challenging, but you can take steps to make the process easier for you and your loved one².

Educate yourself

One of the first steps in caring for a loved one with Parkinson’s disease is to educate yourself about the condition. This includes learning about the symptoms, progression, and treatment options available. You can start by researching information from reputable sources such as the Parkinson’s Foundation or the American Parkinson Disease Association³. Attending doctors appointments with your loved one can also help you learn more about their specific condition and treatment plan.

Join a support group

Joining a support group for caregivers of people with Parkinson’s disease can provide you with emotional support and practical advice from others who are going through similar experiences. These groups can provide a safe space to share your experiences, learn from others, and find comfort in knowing you are not alone.

Adapt your home

Making simple changes to your home can help make it safer and more comfortable for your loved one with Parkinson’s disease. This can include installing grab bars in the bathroom, removing tripping hazards such as throw rugs, and ensuring the home is well-lit. You may also want to consider rearranging furniture to create clear pathways for your loved one to move around more easily.

Help with medications and appointments

Helping your loved one manage their medications and keep track of appointments can be an essential part of their care. This can include reminding them to take their medications on time, keeping a calendar of appointments, and accompanying them to doctor’s visits.

Find time for yourself

Caring for a loved one with Parkinson’s can be emotionally and physically demanding. It’s important to take care of yourself too. This can include taking breaks from caregiving duties, finding time for hobbies or activities you enjoy, and seeking support from friends, family, or a therapist.

Caring for a loved one with Parkinson’s requires patience, understanding, and support. By taking the time to understand the process, you can provide the best possible care for your loved one while also taking care of your own well-being.

Parkinson’s Disease resources for caregivers

For additional caregiver resources and information on Parkinson’s disease treatment, you can browse our library of resources to find the answers you need. If you want to learn more about treatment options, you can take a quick assessment for your loved one to see if Boston Scientific's Deep Brain Stimulation therapy may be right for them.

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